Nothing tastes good anymore, and it’s a real bummer.
Apparently my chemo meds have made me extremely sensitive to the sun, so now I have a rash on my neck and chest.
Also – why do they make these so difficult to open?
I’ve been summoned to Big Barnes tomorrow afternoon to discuss “next steps” with my oncologist, so I’m fairly certain I’m getting kicked out of the trial.
I ended up with a fever all night. It got up to 102.6 at one point. I didn’t call the exchange, because I knew they’d send me to the ER, and fuck that noise.
I talked to Dr. B this morning. She agrees that I don’t need the ER since this is what happened last time, and there was no infection then. She essentially told me that some bodies just hate the way Piqray works, and have extreme reactions. She’s having me hold it for now while she talks to the study team. Sounds like I may be getting a dose reduction. I really want this drug to work for me. I hope my body can learn to tolerate it.
I feel pretty awful right now, though much better than last night. I had chills and body aches alllllll night. And once I get to 101, I get super dizzy when I stand up. No fun.
D has been taking care of me and all the things. He’s the best husband ever, and I’m so lucky to have him.
I guess it’s a good thing I took two weeks off, huh?
My head is killing me. I really want a muffin. I’ve been cleaning/organizing/purging my closet the last few days, and I’m about to do a drop off at Goodwill. I’m trying to do what I can, when I can. But I’ve been taking lots of breaks. I’m lying down right now, because I’m a bit lightheaded.
Fucking chemo, bro.
Less than an hour after dosing, and I’m itching from head to toe.
Oh and my doc intends to keep me on this treatment, though we will be taking a short break from the piqray. And I’m taking massive amounts of steroids and several anti-histamines.
My oncologist told me I had to go to the ER due to the severe rash and 102 fever. They are testing all the things, and I have to be admitted. *sigh*
My rash keeps getting worse.
I loooooove it. I expect to love it even more after I style it myself tomorrow. I’m so glad I went through with it.
The best part of the day: lunch with my besties!!
I had what I thought was my last chemo treatment.