rheumatology update

I spend way too much time at Barnes West Co Hospital.

My knees are all swollen, but we can’t switch up the meds, so I got cortisone shots in both knees. Damn those are a bitch, but they have worked well in the past, so it’s worth the pain.

I’ve been told I can’t run again until Saturday, which sucks because I’m past my NOPE weight according to the doctor’s scale. Ugh. So I guess I’ll just work what I can control: portion sizes, what I eat and drink, water intake, and tracking. That’s all more effective anyway.


Two thumbs way the fuck up

My new meds will be delivered on Tuesday! Woot!! Finally.

I had to have a chat with the specialty pharmacist and it was sort of odd. My takeaway is that I should try to not get sick (lol ok duh), and also avoid grapefruit juice. Apparently, he’s going to call me once a month. Sigh. These fucking biologicals are no joke.

He was like: on a scale from 0 to 10, 0 being not at all and 10 being perfect, how well do you feel your condition is being managed?

Me: Two.

Him: So you’re saying there’s room for improvement? Haha.

This guy has jokes. Great. 🙄

Still though…this is excellent news.

My morning in texts

At 7:15 am

To D:

Good morning, babe. I’m canceling my plans for tonight.

A group text to the girls:

In which I explain that my knees are fucked and I’m not up to going out tonight. Oh and further explaining that I don’t want to pick a new date until I’m on the new meds, because this is happening ALL THE FUCKING TIME NOW.

A separate text to just my bestie:

Apologizing personally. Sending her this pic as way of explanation, despite the fact that she doesn’t need it and loves me unconditionally:

Yep! That’s huge, right? Both are swollen, but the left one is crazy. It’s going up into my thigh. Ughhhhhh.

And a text to my business partner and office manager:

Telling them I’m coming in today, but cannot cover the court hearing at noon, and will probably need to leave early.


I sent another email to my doc last night requesting another round of prednisone while I wait on the meds. I’m hoping she’ll go for it. This is ridiculous.