Tag Archives: stuff jax says

One of the (many) things I love about living in The Grove is the proximity to all of the awesomeness this city has to offer. We were bored after lunch, so we just popped over to the Science Center for a couple of hours.

The highlights:
*Jax was scared of the T. rex.
*But he wanted to make his own at Build-a-Bear. So we did, and he named him Jaxasaurus.
*It would apparently cost $340,000.00 to send Jax into outer space. Let’s not talk about how much it would cost to send me. Ugh.
*We went to the planetarium, and Jax informed me that he’s going to be a super hero astronaut when he grows up. His dad and I agreed that sounds like a pretty bad ass career.

I feel better after writing my chemo rage post in the middle of the night. It was good to get that out. I’ve decided that today is going to be a good day. I need and deserve a good day.

I didn’t sleep much last night, so I had a lot of time to think. I’ve decided to make a list of things I want to do and places I want to go. Then I’m going to start doing those things asap. For example, I’ve always wanted to go to Iceland. So I’m going to work on figuring that out.

In other news, Jackson’s new thing is hugging me and saying, “You’re so cute, mama.” He’s so sweet. He’s the best person I know.

Chemo: the fun never ends

For the last few weeks, I have noticed that the skin on my feet has been sore, but it hasn’t been anything too troublesome.  As of last night, the skin has started hurting so much that it is painful to walk.  My hands feel sore as well, but not as bad.  I decided to do some Google searching, and found out this is a side effect of my good friend Adriamycin. It’s called palmar-plantar erythrodysesthesia.  It seems it may go away or it may not.  Only time will tell. 

MOTHERFUCKER.

I found some suggestions on how to manage the symptoms in the meantime.  I’m really hoping my body will start to recover from all the damage Adriamycin has done.  I was talking to Dr. N at my last appointment, and I asked him if I was in the clear as far as other AC side effects, since they had not yet developed.  He actually laughed (not in a mean way), and said no way.  He said I could experience new side effects up to several months after treatment stops.  Maybe even years, though that is less likely.

Epic fail.  I’m about at my breaking point with this shit.

By the way, I taught Jax how to say epic fail yesterday, and it’s really funny.  I got a recording of it.

let it snow

  • Grant dropped Jackson off this morning.  When he came in, a Johnny Cash tribute band was performing “Jackson” on Fox 2.  Jax flipped his shit.  He danced his little heart out, and when it was done he looked up at me and said, “I love that song!"  It was the cutest ever.
  • I have been way productive today.  We are getting snowed in today, but I got up early and have been getting the apartment cleaned. Things get pretty neglected around here on chemo weeks.
  • Chemo recovery has been rough.  I’m feeling a lot better, but still not great.  I had to skip training yesterday, but I was able to make date night, so that’s a win.
  • Thundersnow is on the way.  Since I don’t have to go anywhere, I’m excited about this.  I experienced thundersnow in Columbia once, and it was pretty impressive.
  • Snow days are fun when you have a kid.  We are going to make cookies.

When I tell Jackson that I love him, I often put my hand on his face at the same time.  I did that tonight.  He grabbed my hand and said, “Oh mama, I love this hand. I hug it and kiss it."  He’s the cutest, sweetest boy.

By the way, I made dinner tonight. 

Jen – 1. Chemo – 1000.

family fun day

I took Jax to see Sesame Street Live at the Peabody Opera House this morning.  This is something I have been looking forward to for a while, and it did not disappoint.  He loved it!  We had really great seats, which was a plus. He spent most of the time smiling and dancing around.  Whenever Elmo left the stage, he would say, “I want more Elmo.” It was cute.  When it was over, he said, “I want more music.”

And now onto some pictures, of course. (These are all crappy iPhone pics.  I need to buy a better camera.)

That Elmo balloon cost $10.00! The toy cost $15.00.  A cookie cost $5.00.  Having a kid isn’t cheap!  But look at that face…well worth the money.

I love making him happy.  Days like today remind me why it’s all worth it.